MIBG Scan

Amelia had her MIGB scan yesterday. We don't know the results yet, but we are not expecting anything bad. The actual scan went well, we have learned a lot over the few weeks and applied it all to make Amelia more comfortable. She had to be sedated and we specifically avoided pethadine (which we think makes Amelia vomit) and Midazolan (which we think makes Amelia extremely irritable) and used medication that has worked in the past (morphine and ???). When in doubt have been trying to avoid drugs from a list at the omsusa.org site.

Amelia's symptoms seem to be much that same, perhaps a little worst after the sedation. The next step is to start a week of intravenus Prednisone treatment on Monday.

Meanwhile the rest of the family is well. Sophie is doing all the correct things for a three week old baby which is sleeping, eating and pooing regularly.