Sunday, September 26, 2004


I am very happy to report that Amelia has progressed very well over the last couple of weeks, to the point where we hardly see OMS symptoms any more. In particular, she is experiencing a lot less irritability. We are now going to try to reduce her steroids as fast as we dare. We initially reduced by 5mg and then by 2.5mg about once a month, but that knocked her around too much so we are now reducing by 1mg once a week. Overall, we have gone from 40mg to 29mg per day over about 3 months. The 1mg reduction seems to be working as the last reduction, a few days ago, didn't seem to have any effect on Amelia's behaviour like the earlier, larger attempts which made her behaviour monstrous for a few days.

One of the reasons that we are so keen to reduce the steriods is that Amelia is getting more and more 'cushingoid'. She now weighs in at about 28kg and she is still putting on 500 grams per week.


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